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Perspectives on Japan: Home Care Increases the Need for Multi-disciplinary Clinics
by Gabriela Harrington, Clinical Nurse
Trends for managing loved ones with ALS
is similar around the world as I learned from
many of the presentations I heard in Japan and
from some nurses I spoke with from different
countries. For example, in Australia and England
the government expects the family to care for the
patient in their home until death. As we know,
here in the United States family caregivers are not
well prepared for the realities of managing the
emotional and physical demands of a loved one
with ALS. This trend toward homecare seems to
hold worldwide, increasing the need for
multidisciplinary clinics that can address the
needs of both ALS patients and their families.
Data from Japan set forth at the conference
suggests that multidisciplinary teamwork
beginning at the time of diagnosis may be most
effective in helping patients and their family
members understand the disease and secure help
with symptom management.
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