| |
Perspective on Japan: Forming a Network
By Kate Bednarz, Dietitian
My experience in Japan was incredible in
many ways but, I’m most grateful for the opportunity to meet
other dietitians that work with motor neuron patients from all
over the world. At the Allied Professionals’ Forum, which
took place the day before the actual conference began, I
listened to Amy Ellis, a dietitian from The Carolinas Medical
Center, speak about Alternative Medicine in ALS. She
provided website links to help us access useful information
about the safety of nutritional supplements often used by our
patients.
Two days later, at the poster session, where
researchers present brief summaries of their work, I spoke at
length about the risks and benefits of PEG placement with a
dietitian from Australia, Vanessa Brenninger. She explained
that she follows the same practice of tube feed placement that
we use at Columbia. We exchanged business cards so that we
could bounce ideas back and forth, and confer in difficult
nutritional situations caused by Motor Neuron Disease.
When I returned hone, I emailed Vanessa and Amy,
and we started an email list called "Dietitians in ALS." I
added a few email contacts, other nuritionists that I have been
in touch with during the years I’ve worked at Columbia. Amy
returned my email with additional email addresses from ALS
centers such as San Antonio, Wake Forest, Cleveland Clinic,
Duke, Emory, and Forbes Norris Clinic. So now we have a
list serve of twelve nutritionists working with ALS, the first of
its kind!
|