Telephone: 212-305-1319 || Email: alscenter@columbia.edu

RESEARCH: Clinical Trials

Amyotrophic Lateral Sclerosis Research Group [ALS-RG] Collection of Data and Biomaterial for Repository Banking to Facilitate Research into the Etiology of ALS and Related Motor Neuron Diseases

PURPOSE AND RATIONALE: Amyotrophic lateral sclerosis and related motor neuron disorders are neurological diseases that cause muscle weakness. In most patients, the cause is unknown. To study possible causes in a person's genetic material, researchers collected blood samples and some basic health-related medical and family history information from patients and controls

STUDY DETAILS: Participants were asked to provide some information on their health and family history, and to give a venous blood sample. The information and blood samples were submitted to the Coriell Institute for Medical Research repository and stored anonymously. Enrollment completed in January 2006. Follow up phenotypic data is ongoing.

For further information, please contact Kate Dalton: keb2114@columbia.edu and phone number (212) 305-2027.